top of page

The people listed below aim to act as a point of contact for any newly-diagnosed families in their area, as well as coordinating fundraising events and raising awareness. Please drop us an email here and we will give you their contact information.


If you would be interested in acting as a regional contact, please get intouch.


Midlands / North West / Wales:

Beth Allen


South West:

Lisa Johnston


South East/London:

Sally Trewartha



Sue Martin 

Regional Contacts

bottom of page