Kabuki UK Family Day 2026 Brings Our Community Together
Photos from Kabuki UK Family Day 2026 at Hatton County World in Warwickshire.
Kabuki UK is a volunteer-driven charity founded by parents of children with Kabuki syndrome. We provide support, advice, information, grants and community events to families across the UK. Our goal is to raise awareness of Kabuki syndrome, support research and provide a welcoming place for all those affected by Kabuki syndrome.
Kabuki syndrome is a rare genetic disorder characterised by distinct facial features, developmental delays, and other congenital abnormalities.
Kabuki UK relies entirely on the generosity of the community to fund our events and grant program. Every donation helps us support the Kabuki syndrome community by providing much needed medical equipment and creating unforgettable in-person experiences for people living with Kabuki syndrome and their families.
Our 2026 Family Day was so much fun, but now it’s over. You can read all about it and see pictures from the day here. Plans have already started for next year’s event – stay tuned for updates!
Ongoing research into Kabuki syndrome aims to uncover its mechanisms and develop potential treatments. Individuals affected by Kabuki syndrome are encouraged to participate in research to help advance these efforts. Kabuki UK supports global research initiatives through partnerships with institutions like the Manchester Rare Conditions Centre and the Kabuki Syndrome Foundation.
On 16th March 2024, our Information Day brought together leading experts and advocacy groups, showcasing the UK’s role in advancing research and care; and providing parents with access to expert Kabuki syndrome clinicians.
Photos from Kabuki UK Family Day 2026 at Hatton County World in Warwickshire.
Photos from Kabuki UK Family Day 2025 at Hatton County World in Warwickshire.
Kabuki UK are proud to be part of an international collaboration to create updated Clinical Management Guidelines for Kabuki syndrome.