Welcome to Kabuki UK
The only UK charity that supports families affected by Kabuki Syndrome.
Kabuki UK Family Day 2020 tickets here
Kabuki UK - COVID19 Update - 23rd March 2020
Family Day
Following our last update we have made the decision to definitely postpone the Kabuki UK Family Day to October 3rd however we will continue to watch the developments and heed government advice.
Please note;
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Bookings at the Holiday Inn which are already made for the original date are fully refundable until June 1st. Please contact the hotel direct to request a refund as soon as possible. Tel 01926 476240 or info@expresswarwick.co.uk
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If you have already booked travel please check the refund policy for your ticket so that you are clear on the terms and conditions.
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Ticket registrations will be carried over to the new date, or refunded if the new date does not suit you. We will email everyone in the next few days to check which they would prefer.
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Travel fund applications will be carried over to the new date.
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Ticket registrations are still open and have now changed to the new date but please remember that things may change again as the situation develops over the next few months as we said before we do not want to take any chances and that we take the safety of our members very seriously.
Grant Scheme
The Grant Scheme is still open, forms can be found at please remember the we have a Grant Scheme for educational equipment should you need anything during this unprecedented time.
With much love
Sally, Beth, Lisa, Kate & Rory
The Trustees
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Family Day 2019
About us
Everyone involved with the running of this charity is a volunteer who has a child with Kabuki and so we understand better than anyone the worries that come with such a diagnosis.
Ben the Bear
Meet the newest member of Kabuki U.K. Ben the Bear. We have given away over 100 of these cute cuddly 8 inch bears.
Ben is proudly
wearing his I ❤
Someone with
Kabuki t shirt.
Aaron's blog
Aaron Oxford shares his thoughts on everything from love to politics and living with Kabuki Syndrome.
Thank you
A huge thank you to all of our Fundraisers. You can see what people have been up to here
Or make a donation securely via PayPal